Welcome

The Shoreline Polio Group was formed in 2010 to provide support and information on resources to those who are now dealing with Post-Polio Syndrome.The members of the group live along the Connecticut and Rhode Island shoreline. Membership is open to anyone afflicted by polio or their family members.Our group meets in the Rhode Island area throughout the year. Visit our About Us page to see our schedule. If you plan to attend, please contact us to verify the location and time.There is a wealth of knowledge in our Reading section. Please browse the links to learn what information is available.Disclaimer: The resources listed here are not endorsed or recommended by this site or the Shoreline Polio Group. Please judge for yourself whether using them will benefit you and your needs.© 2010 - 2026 The Shoreline Polio Group

About

The Shoreline Polio Group meets for informal lunches at local restaurants.Contact us to verify time and location.2026 Lunch Schedule
Wednesday April 8th noon
Wednesday June 10th at noon
Wednesday September 9th noon
Wednesday December 9th at noon.

Email Us

Go Packet

A Go Packet contains information about your health conditions and what you do on a regular basis to maintain your life. It is designed to provide care givers information about your needs should you be hospitalized.Some suggestions to add to your packet
Include your name and date of birth
Do you have other health conditions?
Do you follow a special diet?
Do you have food allergies?
What medications do you take?
Do you have a daily exercise routine? Use a heating pad?
Are you cold sensitive?
Do you have sleep requirements, extra blankets, pillows, Cpap?
Do you require anything to support breathing?
Do need mobility assistance, braces, canes, scooter, shoes?
Do you need help with ADLs?
Do you have physical limitations? walking, weak limbs, balance, etc
Do you have vision & hearing issues?
How does Post Polio Syndrome affect you?Discuss your packet with your doctor and ask him to sign it. This will give it more impact to those who read it.Here are some other things to include:
Anesthesia Warning Link
Anesthesia Issues Link
Preventing issues Link
CO2 retention Link

Clinics

These clinics have experience treating patients with Post Polio SyndromeSpaulding Rehab
Framingham, MA
LinkGaylord Rehab Hospital
Wallingford, CT
LinkRehab Hospital of RI
North Smithfield, RI
Link

Mobility

Custom Adaptive Systems
Vehicle and home modifications, stair and car lifts, equipment repair
Ron Nelson
11 Grandview St, Unit 9
Coventry, RI 02816
(401) 821-2099Masonic Medical Distribution Center
Free Medical Equipment
116 Long St
Warwick, RI 02886
Phone: (401) 435-4650, Bob Allen
[email protected]
Mason's EquipLiberty Mobility
Power wheelchairs and scooters, sales and service
5 Church Street
West Warwick, RI 02893
(401) 827-8800
[email protected]
Liberty MobilityNEAT Center at Oak Hill
Assitive tech, home services, adaptive equipment
120 Holcomb Street
Hartford, CT
Toll Free in CT: (866) 526-4492
(860) 243-2869
NEATMobility Equipment Recyclers of NE
Mobility and medical equipment, home and vehicle modifications
Sales, rentals and repairs
6802 Post Rd, North Kingstown, RI 02852
(401) 294-4111
MER of NELifeway Danielson
Lifts, ramps, elevators, home modification
666 Upper Maple Street
Danielson, CT 06239
Tel: (860) 774-0736
LifeWayAdaptive Mobility Equipment
Accessible vehicles, vehicle modifications, stair and car lifts, equipment repair
1551 Fall River Avenue
Seekonk, MA 02771
(800) 331-2849
AMEMobility Works
Accessible vehicles
57 George Leven Dr
N Attleboro, MA 02760
(800) 743-3292
Mobility WorksAlso, check your local Senior Citizens Center

Agencies

Ocean State Center for Independent Living
944 Warwick Ave
Warwick, RI (401) 738-1013
OSCILRhode Island Infantile Paralysis Foundation
Mark McGovern
95 Crosswynds Dr
Saunderstown, RI 02874
(401) 667-0540Disability Network of Eastern CT
DNECTechACCESS of RI
110 Jefferson Blvd. Suite I
Warwick, RI 02888-3854
Voice/TDD: (401) 463-0202
Toll-free: (800) 916-8324
Tech AccessDisability Rights Rhode Island
220 Toll Gate Road
Warwick, RI 02886
(401) 831-3150
[email protected]
Disability Rights Rhode Island
DRRI

Reading

Handbook on the Late Effects of Poliomyelitis for Physicians and Survivors
LinkDr Bruno's Facebook Group
LinkBritish Polio Fellowship
LinkPost Polio Bulletin Board
LinkDr Bruno's articles
LinkPost Poilio Health International
LinkPolio Survivors Network
Link